Comments for http://karennacolcroft.com Wed, 04 Aug 2010 05:46:07 +0000 http://wordpress.org/?v=2.8.6 hourly 1 Comment on Tired…So Tired… by Stevie Carroll http://karennacolcroft.com/?p=360&cpage=1#comment-356 Stevie Carroll Wed, 04 Aug 2010 05:46:07 +0000 http://karennacolcroft.com/?p=360#comment-356 Completely with you on having a name for what's going on with you. Finally getting a specialist to state that I do have hypermobility, and being able to research and find out that that ties in with everything else going on with me was a great relief. Do you get better days and worse days? My arthralgia and fatigue play off with each other so some days it's not really worth going to work, but other days I can do everything asked of me and more. Good luck with finding ways of managing the CFS that work for you. Completely with you on having a name for what’s going on with you. Finally getting a specialist to state that I do have hypermobility, and being able to research and find out that that ties in with everything else going on with me was a great relief.

Do you get better days and worse days? My arthralgia and fatigue play off with each other so some days it’s not really worth going to work, but other days I can do everything asked of me and more.

Good luck with finding ways of managing the CFS that work for you.

]]> Comment on Welcome! by K. R. Bailey http://karennacolcroft.com?cpage=1#comment-355 K. R. Bailey Tue, 03 Aug 2010 05:46:49 +0000 http://karennacolcroft.com/?page_id=4#comment-355 Great website! I enjoyed browsing. Great website! I enjoyed browsing.

]]> Comment on Tired…So Tired… by Susie AKA Susilien http://karennacolcroft.com/?p=360&cpage=1#comment-354 Susie AKA Susilien Fri, 23 Jul 2010 17:39:05 +0000 http://karennacolcroft.com/?p=360#comment-354 Karenna, In some ways I can identify and in so many others I can't. My father is disabled and has many joints that just don't function properly, along with other chronic problems. There are so many days when he just sleeps or lays there. When we can get him to stick to a schedule he does so much better. I am thrilled for you that you now have some knowledge. I will be praying that you have many more good days than the other. Karenna,

In some ways I can identify and in so many others I can’t. My father is disabled and has many joints that just don’t function properly, along with other chronic problems. There are so many days when he just sleeps or lays there. When we can get him to stick to a schedule he does so much better.

I am thrilled for you that you now have some knowledge. I will be praying that you have many more good days than the other.

]]> Comment on Tired…So Tired… by Janice Seagraves http://karennacolcroft.com/?p=360&cpage=1#comment-353 Janice Seagraves Thu, 22 Jul 2010 22:28:49 +0000 http://karennacolcroft.com/?p=360#comment-353 One of my hubby's friends was diagnosed with Epstein Barr syndrome. He sleeps a lot. Just crashes over when he watches TV. My hubby is a sleepy kind of guy too, I think he has narcolepsy but he's never been diagnosed. He'll even fall asleep standing up. He has to have eight to nine hours (or more) a night or he just can stay awake. One night while were where over at the friend's house, his wife waved at me and pointed at our two guys. They had both fallen asleep against each other. It was hilarious. She took a picture. Both men held down good jobs and had a family. Hubby and I have been married for 30 years. You will figure this out. Chronic fatigue syndrome is manageable. You can get through this. Knowing is half the battle. One of my hubby’s friends was diagnosed with Epstein Barr syndrome. He sleeps a lot. Just crashes over when he watches TV.

My hubby is a sleepy kind of guy too, I think he has narcolepsy but he’s never been diagnosed. He’ll even fall asleep standing up. He has to have eight to nine hours (or more) a night or he just can stay awake.

One night while were where over at the friend’s house, his wife waved at me and pointed at our two guys.

They had both fallen asleep against each other. It was hilarious. She took a picture.

Both men held down good jobs and had a family. Hubby and I have been married for 30 years.

You will figure this out. Chronic fatigue syndrome is manageable. You can get through this. Knowing is half the battle.

]]> Comment on Tired…So Tired… by Karenna http://karennacolcroft.com/?p=360&cpage=1#comment-352 Karenna Thu, 22 Jul 2010 13:14:35 +0000 http://karennacolcroft.com/?p=360#comment-352 ZAM, exactly. I think a lot of people are tired, because they don't get enough sleep or stress gives them insomnia, but they can still get through the day. Some days, I can't. Putting a name to it gives me some comfort, because I know it isn't anything life-threatening, and also gives me something to tell people besides "I'm tired all the time." The name takes away a little bit of stress, and since stress makes the symptoms worse, any relief is good. Thank you, ZAM :) Jaime, I think my life is pretty blessed too, to be honest. Yeah, I have this crappy condition, but I also have two beautiful daughters who do little things like hugging me or bringing me a bottle of water when they know I'm having a bad day, and a husband who tells me his sole mission in life is to take care of me and make me happy. And a writing career, and great friends :) Thank you for the good thoughts and good vibes! ZAM, exactly. I think a lot of people are tired, because they don’t get enough sleep or stress gives them insomnia, but they can still get through the day. Some days, I can’t. Putting a name to it gives me some comfort, because I know it isn’t anything life-threatening, and also gives me something to tell people besides “I’m tired all the time.” The name takes away a little bit of stress, and since stress makes the symptoms worse, any relief is good. Thank you, ZAM :)

Jaime, I think my life is pretty blessed too, to be honest. Yeah, I have this crappy condition, but I also have two beautiful daughters who do little things like hugging me or bringing me a bottle of water when they know I’m having a bad day, and a husband who tells me his sole mission in life is to take care of me and make me happy. And a writing career, and great friends :) Thank you for the good thoughts and good vibes!

]]> Comment on Tired…So Tired… by Jaime Samms http://karennacolcroft.com/?p=360&cpage=1#comment-351 Jaime Samms Thu, 22 Jul 2010 02:33:35 +0000 http://karennacolcroft.com/?p=360#comment-351 I can't say I understand how you feel, because I've lived a blessed life, and it kills me that I can't share a little bit of those blessings with the people who could really be using them about now. Always know you are are in my thoughts, and I'll send the best vibes I can in your direction. *hugs* Jaime I can’t say I understand how you feel, because I’ve lived a blessed life, and it kills me that I can’t share a little bit of those blessings with the people who could really be using them about now. Always know you are are in my thoughts, and I’ll send the best vibes I can in your direction.

*hugs*

Jaime

]]> Comment on Tired…So Tired… by zamaxfield http://karennacolcroft.com/?p=360&cpage=1#comment-350 zamaxfield Thu, 22 Jul 2010 00:18:43 +0000 http://karennacolcroft.com/?p=360#comment-350 Wow! That's a tough diagnosis and I can fully understand the ambiguity of your post. On the one hand, it's nice to put a name to something. Tired is something that's so subjective, isn't it? Everyone thinks they're tired, but when it makes it difficult to function it's a HUGE problem. On the other, naming it doesn't solve the problem (I had to edit this to put in that other hand, DUH!) I so admire your determination to maintain a routine. Especially getting exercise. And a regular exercise program will do for you what antidepressants do, so you might be right not to go that route. That's always a tough decision. Keep on, and write like the wind, I admire your determination so much! Wow! That’s a tough diagnosis and I can fully understand the ambiguity of your post. On the one hand, it’s nice to put a name to something. Tired is something that’s so subjective, isn’t it? Everyone thinks they’re tired, but when it makes it difficult to function it’s a HUGE problem. On the other, naming it doesn’t solve the problem (I had to edit this to put in that other hand, DUH!) I so admire your determination to maintain a routine. Especially getting exercise. And a regular exercise program will do for you what antidepressants do, so you might be right not to go that route. That’s always a tough decision.

Keep on, and write like the wind, I admire your determination so much!

]]> Comment on Tired…So Tired… by Karenna http://karennacolcroft.com/?p=360&cpage=1#comment-349 Karenna Wed, 21 Jul 2010 23:59:08 +0000 http://karennacolcroft.com/?p=360#comment-349 Thank you, Carol :) Two of the things my doctor mentioned to help manage the symptoms are meditation (which I've been doing on a regular basis for five years now) and yoga. It's been about three years, but I used to practice yoga regularly and even was certified as an instructor before a leg injury sidelined me, so it may be time to start up again. Thank you, Carol :) Two of the things my doctor mentioned to help manage the symptoms are meditation (which I’ve been doing on a regular basis for five years now) and yoga. It’s been about three years, but I used to practice yoga regularly and even was certified as an instructor before a leg injury sidelined me, so it may be time to start up again.

]]> Comment on Tired…So Tired… by Carol H. http://karennacolcroft.com/?p=360&cpage=1#comment-348 Carol H. Wed, 21 Jul 2010 23:56:49 +0000 http://karennacolcroft.com/?p=360#comment-348 Karenna, I am glad that a doctor finally listened to you and gave you a name. I hope he/she also directed you to some resourses available to "help" and inform. I work in physical therapy and treat CFS, so I have heard many stories. I hope you continue to pursue as best as you can! I have heard the frustration on not finding the rest and they as well choose the non medication part as the side affects are not worth it. As they say, the "cure is worse sometimes than the disease". Hang tough and Vent when necessary as there are people who listen (even if we cannot slay the dragon for you). Karenna,
I am glad that a doctor finally listened to you and gave you a name. I hope he/she also directed you to some resourses available to “help” and inform. I work in physical therapy and treat CFS, so I have heard many stories. I hope you continue to pursue as best as you can! I have heard the frustration on not finding the rest and they as well choose the non medication part as the side affects are not worth it. As they say, the “cure is worse sometimes than the disease”. Hang tough and Vent when necessary as there are people who listen (even if we cannot slay the dragon for you).

]]> Comment on Tired…So Tired… by Karenna http://karennacolcroft.com/?p=360&cpage=1#comment-347 Karenna Wed, 21 Jul 2010 23:32:12 +0000 http://karennacolcroft.com/?p=360#comment-347 Thank you for commenting, Patric. It definitely helps a lot to know that others do understand what it's like, though I truly wish my friends didn't know from personal experience... My argument with my doctor since he started waffling about diagnosing me has been, "I don't want to have a chronic disease; I just want to have a name for what's wrong with me, because not knowing is a hell of a lot scarier." I think he finally understood that I wasn't asking him to give me a life sentence; I was asking for knowledge so I could go on living my life. The fear that it might be something more serious was making the symptoms even worse, not to mention being on my mind every time I looked at my daughters. I really, really appreciate your words here, Patric, and please know how much it does help me to hear this from you :) Yeah, yeah... no rest for the wicked. LOL Thank you for commenting, Patric. It definitely helps a lot to know that others do understand what it’s like, though I truly wish my friends didn’t know from personal experience…

My argument with my doctor since he started waffling about diagnosing me has been, “I don’t want to have a chronic disease; I just want to have a name for what’s wrong with me, because not knowing is a hell of a lot scarier.” I think he finally understood that I wasn’t asking him to give me a life sentence; I was asking for knowledge so I could go on living my life. The fear that it might be something more serious was making the symptoms even worse, not to mention being on my mind every time I looked at my daughters.

I really, really appreciate your words here, Patric, and please know how much it does help me to hear this from you :)

Yeah, yeah… no rest for the wicked. LOL

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